Impacting the Future by Exploring the Past
The Organic Acidemia Natural History Registry
The Organic Acidemia natural history registry serves the organic acidemia community. It is a free platform and a great way to share your journey.
For Patients
Get Involved
Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the organic acidemia community.
For Researchers
Drive Research
This is a unique rare disease patient registry. Are you interested in using our data to further organic acidemia research?