The Organic Acidemia Natural History Registry is Live
We are pleased to announce the launch of Organic Acidemia Natural History Registry! The Organic Acidemia Natural History Registry creates a platform for patients around the world to strengthen their voices and share information about organic acidemias, a group of diseases that causes poor feeding, vomiting, lethargy, weakness, and metabolic distress. Organic Acidemias currently have no cure. Designed with the input of scientists and patients, this global resource will provide data for researchers to use to advance drug development and treatment options to help improve organic acidemia patient care. Join now and let your data tell your story!
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