The Organic Acidemia Natural History Registry

Sponsor

The Organic Acidemia Association
9040 Duluth Street
Golden Valley, MN 55429
oaanews.org

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Registry Contact

Kathy Stagni
mkstagni@gmail.com
(612) 382-8708

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Institutional Review Board (IRB)

North Star Review Board
9 Cortland Rd., Freeport, ME 04032
learningirb.org/contact-us
info@northstarreviewboard.org

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact the North Star Review Board at learningirb.org/contact-us.

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Visit the National Organization for Rare Disorders home page at rarediseases.org.